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Charlie Gard’s Parents Are Forced to Stop Fighting for Their Dying Baby – Article by Marianne March

Charlie Gard’s Parents Are Forced to Stop Fighting for Their Dying Baby – Article by Marianne March

The New Renaissance Hat
Marianne March
July 27, 2017
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I cannot imagine the pain Charlie Gard’s parents are feeling now, as they savor their last moments with their precious child. Charlie is 11 months old and he’s dying.

Chris and Connie have been fighting for months to get treatment for Charlie, ever since he was diagnosed with a rare genetic condition, mitochondrial DNA depletion syndrome. But they have been forced to give up that fight.

I can’t imagine their pain, but I can imagine their fury because I share it.

From the Hospital to the Courts

Charlie is not mine. I’ve never met him or anyone who knows him. Yet I am furious with the British government for refusing to allow his parents to take their dying son to the United States for treatment: a therapy trial, his last and only hope.

No further recourse was available in the UK, but an American doctor was ready to try to help him at Columbia University Medical Center. Charlie’s parents raised £1.4 million through crowdfunding; they had the money to take him to the US by air ambulance.

But doctors at Great Ormond Street Hospital in London didn’t like that idea. They said it wouldn’t help, that the American therapy was experimental. They said the baby’s life support should just stop.

On April 11th, a British High Court judge ruled with the doctors, empowering them to turn off Charlie’s life-support machines. His mother screamed “no” when she heard the verdict.

There was a petition with more than 110,000 names on it. People wrote letters to the Prime Minister, calling on her to release Charlie from Great Ormond Street’s care. The pope said he was praying for Charlie’s parents, “hoping that their desire to accompany and care for their own child to the end is not ignored.”

And now Charlie is out of time.

Even US President Trump tweeted that “If we can help little #CharlieGard, as per our friends in the U.K. and the Pope, we would be delighted to do so.”

Charlie’s parents challenged the decision in the Court of Appeals, the Supreme Court, and the European Court of Human Rights.

All to no avail. The Courts would not allow them to try to save their baby’s life.

Who Can Call This Justice?

And now Charlie is out of time. According to the BBC, “US neurologist Dr. Michio Hirano had said he was no longer willing to offer the baby experimental therapy after he saw the results of a new MRI scan last week.”

It’s possible that Charlie’s doctors were right, that experimental treatment wouldn’t have helped (although his parents don’t think so, nor do American and Italian doctors). But what harm could it have done when he’s dying anyway? And if his parents had the means to give him one last chance, why shouldn’t they exercise their right to do so? They belong to Charlie just as he belongs to them, and no one but Chris and Connie should get the final say on his medical care.

I never really knew what people meant by the phrase “death panels” before. It was just a term bandied about by talking heads and political personalities. It’s chilling how well it applies in this instance: a group of bureaucrats that sits around deciding who is worthy of medical care.

I don’t know how the power slipped away from the individual, whether taken by force or given away with applause, but this is outrageous. And it’s wrong.

Read with a Box of Tissues

I will leave you with the words of Connie Yates, Charlie’s mom:

Due to the deterioration in his muscles, there is now no way back for Charlie. Time that has been wasted. It is time that has sadly gone against him.

We want people to realise that we have been speaking to parents whose children were just like Charlie before starting treatment and now some of them are walking around like normal children. We wanted Charlie to have that chance too.

All we wanted to do was take Charlie from one world renowned hospital to another world renowned hospital in the attempt to save his life and to be treated by the world leader in mitochondrial disease. We feel that we should have been trusted as parents to do so but we will always know in our hearts that we did the very best for Charlie and I hope that he is proud of us for fighting his corner.

Charlie had a real chance of getting better. It’s now unfortunately too late for him but it’s not too late for others with this horrible disease and other diseases. We will continue to help and support families of ill children and try and make Charlie live on in the lives of others. We owe it to him to not let his life be in vain.

Despite the way that our beautiful son has been spoken about sometimes, as if he not worthy of a chance at life, our son is an absolute WARRIOR and we could not be prouder of him and we will miss him terribly. One little boy has brought the world together and whatever people’s opinions are, no one can deny the impact our beautiful son has had on the world and his legacy will never ever die.

We are now going to spend our last precious moments with our son Charlie, who unfortunately won’t make his 1st birthday in just under 2 weeks’ time, and we would ask that our privacy is respected at this very difficult time.

Mummy and Daddy love you so much Charlie, we always have and we always will and we are so sorry that we couldn’t save you.”

Marianne March is a recent graduate of Georgia State University, where she majored in Public Policy, with a minor in Economics. Follow her on twitter @mari_tweets.

This article was published by The Foundation for Economic Education and may be freely distributed, subject to a Creative Commons Attribution 4.0 International License, which requires that credit be given to the author. Read the original article.

Why the Joint Session Standing Ovations Creeped Me Out – Article by Marianne March

Why the Joint Session Standing Ovations Creeped Me Out – Article by Marianne March

The New Renaissance HatMarianne March
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On February 28, 2017, I tuned in for President Trump’s speech to a joint session of Congress. What stood out to me most, besides VP Pence and Speaker Paul Ryan’s matching cobalt ties, was the way those two men and a portion of the audience kept popping up and down, out of their chairs like plastic rodents in a game of whack-a-mole. During the roughly hourlong speech, (some of) the audience rose out of their chairs, clapping, no less than twenty times.

Clap Until Your Hands Are Raw

There is something incredibly disingenuous about giving an enthusiastic standing ovation every three minutes. What inspires people to participate so eagerly in, what is clear to any outsider, an orchestrated scene?

It calls to mind, Russian novelist, Aleksandr Solzhenitsyn’s book The Gulag Archipelago, in which he describes the following scene,

At the conclusion of the conference, a tribute to Comrade Stalin was called for. Of course, everyone stood up (just as everyone had leaped to his feet during the conference at every mention of his name). … For three minutes, four minutes, five minutes, the stormy applause, rising to an ovation, continued. But palms were getting sore and raised arms were already aching. And the older people were panting from exhaustion. It was becoming insufferably silly even to those who really adored Stalin.

However, who would dare to be the first to stop? … After all, NKVD men were standing in the hall applauding and watching to see who would quit first!

Then, after eleven minutes, the director of the paper factory assumed a businesslike expression and sat down in his seat. And, oh, a miracle took place! Where had the universal, uninhibited, indescribable enthusiasm gone? To a man, everyone else stopped dead and sat down. They had been saved!

The squirrel had been smart enough to jump off his revolving wheel. That, however, was how they discovered who the independent people were. And that was how they went about eliminating them. That same night the factory director was arrested. They easily pasted ten years on him on the pretext of something quite different. But after he had signed Form 206, the final document of the interrogation, his interrogator reminded him:

“Don’t ever be the first to stop applauding.”

Circa 2017

Some amount of applauding and even standing ovations are not out of place at a political event, especially a presidential speech, but audience reactions to Mr. Trump’s joint session address were borderline ridiculous.

People in the gallery, and seated behind Trump, stood and applauded law enforcement, the First Lady, protectionist trade policies, “transitioning” out of Obamacare, and they clapped almost endlessly for Carryn Owens, the grieving widow of Navy Seal Ryan Owens who was killed during a raid in Yemen in late January.

During the several minutes that they stood clapping for her, Carryn Owens sobbed, clenched her hands together and looked up to the ceiling, mouthed the words ‘thank you,’ and clearly struggled to keep her composure. It was difficult to watch.

Glenn Greenwald described the moment perfectly in an Intercept article:

Independent of the political intent behind it, any well-functioning human being would feel great empathy watching a grieving spouse mourning and struggling to emotionally cope with the recent, sudden death of her partner.”

And it’s true. I imagine few could help feeling sympathy for this woman. Not only has she borne the loss of her husband, but she is now being used as a pawn to promote and glorify war and suffering.

Using Women to Promote War

And what a paltry recompense applause is. I’m sure that the widow Owens would much prefer that the men and women of Congress keep their hands in their pockets to losing her spouse. But this is a powerful tool for promoting war and it has been used for a long time.

Exalting only a country’s own soldiers, without so much as a whispered reference to the other victims of war, the deaths of innocent civilians, and using women, particularly mothers and widows, to connect an audience with less negative perceptions of war is an old trick.

This tactic is perhaps best explained in the 1964 film, The Americanization of Emily,

And it’s always the widows who lead the Memorial Day parades…. We shall never end wars by blaming it on ministers and generals or warmongering imperialists or all the other banal bogies. It’s the rest of us who build statues to those generals and name boulevards after those ministers; the rest of us who make heroes of our dead and shrines of our battlefields. We wear our widows’ weeds like nuns … and perpetuate war by exalting its sacrifices.”

What is amazing is that we’re still falling for these schemes.

Again, I agree with Greenwald that,

None of this is to say that the tribute to Owens and the sympathy for his wife are undeserved. Quite the contrary: when a country, decade after decade, keeps sending a small, largely disadvantaged portion of its citizenry to bear all the costs and risks of the wars it starts – while the nation’s elite and its families are largely immune – the least the immunized elites can do is pay symbolic tribute when they are killed.”

In his address, President Trump called for “one of the largest increases in national defense spending in American history.” And then he proceeded to show us just how he’s going to get it. How many more widows and victims will be paraded out in front of us in the years to come?

We must recognize that when we allow our emotions to be manipulated in this manner, we, too, become pawns of the powerful.

Marianne March is a recent graduate of Georgia State University, where she majored in Public Policy, with a minor in Economics. Follow her on twitter @mari_tweets.

This article was published by The Foundation for Economic Education and may be freely distributed, subject to a Creative Commons Attribution 4.0 International License, which requires that credit be given to the author. Read the original article.